CLIMBING THE MOUNTAIN

...

Gosh, it all has turned beyond hectic, beyond tiresome... But hope and belief fuels our actions everyday. Our DeeVa is holding on at the hospital, had her Gtube-nissan wrap surgery, and is waiting for the cough assist to see if she gets extubated. Things are moving, slowly but certainly. We need to take her to the US mainland so SMA experts can actually customize the SMA NIV protocol for her...

Yesterday the bank account to gather funds towards this purpose was created. Banco Popular de Puerto Rico, fundraising account for Deirdre Medina is 041-473272. We will appreciate every cent. I will post the flyer as soon as I get it (LightShadow has been working on that, and many other things).

HOME: Home is where the heart is... So right now, home is the hospital.

FRIENDS: Well, they are all keeping themselves busy, and helping DeeVa one way or the other...

LightShadow drowned in work, helping Groundel, helping DeeVa... She's our spokesperson out there in the Wester area... Well, her hands are quite full, and she smiles anyway.

Coriolis, giving us shelter all this time that we've been stranded in Area Metro. He's provided technological assitance to moi so I can keep on in the Internet, as well as he is the co-founder of Deedee's benefit account.

Groundel is in Hormigueros, finally out of the hospital last Monday. He's been cleaning up and putting stuff together, and worrying about Deedee non-stop.

TheMAGE: Tired... Hopefu... He's been the driver all this long, the clown so Deedee laughs continuously, and as loving as ever. He is very tough underneath the soft mask he always wears. He has kept me strong, keeping me from collapsing or surrendering. I love him deeply, and soon our first anniversary will creep on us... A year that has passed changing our lives forever. And I would not have it any other way.

ME: Tired... Very tired. Sleeping 4-5 hours is not good for me. I NEED 9-10 hours to be fully functional... but the need to gather all the info I can so I have the tools to fight for Deedee forces the sacrifice. Hopeful. I truly believe that Deedee will prevail, I can feel it each time I look at her. She has a big purpose ahead of herself... And we are to facilitate the way...

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