Tuesday, August 30, 2016

IMPORTANT STUFF


Kitty Time







Visiting A Diva's Rest




Monday, May 23, 2016

Tired

Just tired. Missing my diva. Since her passing away life has been on hold... It is a replay of work, work, work, smile, work, work, work, smile... My wings are broken. My air lacks oxygen. My dreams are rotting and stale.

What to do. I gave my 300% to believing my lovely diva would beat the odds. Quality of life, therapies, fighting the system, love... It all went on with no moment of silence or a moment to gather strength... And then she's gone... All halted abruptly... So many changes during so little time...

From a family knowing trials and challenges, we became a family who lost a child... And so everyone that was there suddenly was not... We moved 3 times, faced and survived homelessness, and live on a rat race that is never ending and all consuming.

I am tired, physically and emotionally. I need my own place, I need dreams to grow and take me to fantastic places I dreamed of, I need restored hope... I need something or someone to mend my broken wings... wings that will forever bear the marks of a diva gone... never forgotten... always missed...

Time goes on. The emptiness and hollowness are endless and slowly drowning the phoenix... A slow choke. A pain that cannot be cured.

Thursday, June 07, 2012

Limber de Coco

comprate leche de coco, agua de coco, escarchita de coco y crema de coco. Todo en cantidades iguales. A~ades azucar y espera al otro dia! Estaras comiendo limbersito por pal de dias!

Sunday, January 15, 2012

Tripp died tonight

Tripp, a very special 2 year old boy who battled an ugly illness, died tonight.

His blog is "EBing a Mommy:The challenging yet rewarding journey of caring for my son with EB".

He died at 2 years 8 months, and he had a strange/rare illness named EB for short... Tripp was born on May 14, 2009.

He was diagnosed with a rare genetic skin disease called Epidermolysis Bullosa "EB." Any type of friction on his skin or mucous membranes causes blisters. He was not supposed to live beyond a year.

Rest in Peace, Little Drummer Boy.

The Brave Little Soul
By: John Alessi

Not too long ago in Heaven there was a little soul who took wonder in observing the world. He especially enjoyed the love he saw there and often expressed this joy with God. One day however the little soul was sad, for on this day he saw suffering in the world. He approached God and sadly asked, "Why do bad things happen; why is there suffering in the world?"

God paused for a moment and replied, "Little soul, do not be sad, for the suffering you see, unlocks the love in people's hearts." The little soul was confused. "What do you mean," he asked. God replied, "Have you not noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone."

The little soul began to understand and listened attentively as God continued, "The suffering soul unlocks the love in people's hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely, because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this - it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer - to unlock this love - to create this miracle for the good of all humanity."

Just then the little soul got a wonderful idea and could hardly contain himself. With his wings fluttering, bouncing up and down, the little soul excitedly replied. "I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people's hearts! I want to create that miracle!"

God smiled and said, "You are a brave soul I know, and thus I will grant your request. But even though you are very brave you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. They have already chosen a name for you". God and the brave soul shared a smile, and then embraced.

In parting, God said, "Do not forget little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed." Thus at that moment the brave little soul was born into the world, and through his suffering and God's strength, he unlocked the goodness and love in people's hearts. For so many people dropped their differences and came together to show their love.

Priorities became properly aligned.
People gave from their hearts.
Those that were always too busy found time.
Many began new spiritual journeys, some regained lost faith - many came back to God.
Parents hugged their children tighter.
Friends and family grew closer.

Old friends got together and new friendships were made.
Distant family reunited, and every family spent more time together.
Everyone prayed.
Peace and love reigned.
Lives changed forever.

It was good.
The world was a better place.
The miracle had happened.
God was pleased.

~

Take a Moment to Understand Special Needs Parents

This was a post by someone with a similar situation... Sums up many things we go through. Keeping it here so I don't loose it.

"Parents of special needs kids get so fed up with having to deal with people who may not be uncaring but simply don't take the extra moment to understand. We are connected to our children in ways that other parents cannot understand. We know without anything being said just what is needed at any given moment. We learn to anticipate what will happen next.

We become educated in the legal,medical,and government arenas more than some people who have degrees in those fields. We learn to fight the fight and go into battle with a smile on our faces because we have to not because we want to. We learned the hard way just what must be sacrificed in order to get the care and attention our children need. We learned to give more of ourselves to that child than we would ever conceive of giving to another human being. We not only live it,eat it,sleep it, we also dream it.

Our lives are consumed by the care of our children. Our lives don't exist except for the care of our children. Everything we do revolves around what may be needed next for that child. We have been humbled,humiliated, felt guilty,made ashamed, brought to the point of begging at times,made angry,made determined,driven to the point of desperation,all for the sake of our children.

We have sat in hospitals for days,weeks,months praying that our child makes it one more day,praying that our child lives long enough to know how much we love them,stood the onslaught of surgeries that could be life threatening,procedures that could make the situation worse,been through treatments that would make a grown man cringe,all in an attempt to make our children better. We have died a little inside every time our child cries from the pain of all these things.

We have dispensed more medication than a pharmacy could hold. We have tried every crazy experiment, every suggestion made,every piece of equipment,every new medication,every strange idea on the hope that it might work. We have dealt with quacks,conmen, inexperienced people,uncaring individuals,rudeness,and cruelty toward our children. We have lost everything,sold everything, traded everything in the pursuit of help for our children.

We have given up friendships,family, relationships,and marriages all for our children. We have other children that have given up parts of their lives for this child. Children who never complain while they do without so this child may have something needed. We have learned to be realistic people.

We know how bad the situation can get and that we may lose our children before their time yet we hope for that one cure that will make it all go away and give us our lives back. We hope that we can help another parent or people in the future by sharing our ideas, thoughts,angst,miseries,hopes and dreams. We have been made strong by the honor of being in the presence of a child with the courage to face more needles, more doctors,more surgeries, more treatments and procedures with a smile on their face.

We have stood strong when our children have lost the battle and gone before their time. We say we are okay all the time when inside we are struggling to make it one more day. We know the potential our children have,we see their abilities as well as their limitations when they go through the procedures,treatments, surgeries,and struggle to accomplish even the smallest tasks. We are made strong by seeing the courage,determination and –most of –the hope in that child’s face every day. We do this EVERY SINGLE DAY of our lives.

So PLEASE do not treat us as if we do not know what we are talking about. We have learned to face down worse tragedies,more complicated messes,and deal with more situations than you can imagine. We have been bent, sometimes broken,medicated, treated,depressed,angry,sad,and most of all a little fearful of the future.

We have slayed more dragons,conquered more worlds, invented more items,discovered more truths,and all for a smile when that child is happy. We are diplomats, advocates, fighters, unlicensed doctors,therapists, surgeons,nurses. We are a formidable force to be dealt with when it comes to our children. We have neglected our spouses,other children,housework,jobs,friends, family,society,and our own health because we have been busy in the pursuit of a better life for our children.

So do not think that we are incompetent –instead remember that we are soldiers in the battle for a better life. We are more focused on which battles to pursue. Not for ourselves but for a person who cannot do it for themselves.

So listen to us when we speak because we know what we are talking about. Don’t talk down to us,respect the fact that we are caregivers of the most special people in the world. We have an honor you will hopefully never receive,we earned it the hardest way possible,and we carry that badge of honor with us in every single thing we do,every word we speak,and every action we take.

May God Bless"

by Anonymous Parent of Special Needs Kid

Tuesday, December 27, 2011

For all sick kids in the world

Prayer of St. Francis de Sales, Be at Peace:
Do not look forward in fear to the changes of life; rather look to them with full hope as they arise. God, whose very own you are, will deliver you from out of them. He has kept you hitherto, and He will lead you safely through all things; and when you cannot stand it, God will bury you in his arms. Do not look forward to what may happen tomorrow; the same everlasting Father who cares for you today will take care of you tomorrow and every day. Either He will shield you from suffering, or He will give you unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations, and say continually:
"The Lord is my strength and my shield; my heart has trusted in Him and I am helped. He is not only with me but in me and I in Him."
Amen.

Friday, December 23, 2011

Wednesday, November 16, 2011

Tuesday, October 25, 2011

Pumpkin stuff

PUMPKIN BURGER
Whisk together beaten egg, chili and garlic powder and cinnamon. Combine mashed black beans, canned pumpkin, rolled oats and the egg mixture to form a mixture that is sticky yet holds together. Shape into patties and bake in a 375° oven, turning once, for about 15 minutes. Assemble with burger fixings.

TRIFFLE
Season the canned pumpkin with pumpkin pie spice (or a mixture of ground cloves, cinnamon and ginger) and pure vanilla extract, then fold in marshmallow cream. Layer in a trifle bowl with crushed graham crackers and candied pecans.

FLAN
* 6 large eggs
* 6 large egg yolks
* 1 3/4 cups sugar
* 1 teaspoon orange zest
* 2 1/3 cups heavy cream
* 1 cup milk
* 5 whole cloves
* 3 whole star anise
* 1 cardamom pod, cracked
* 1 teaspoon vanilla extract
* 1 15-ounce can pumpkin purée
* special equipment
12 6-ounce ramekins

Whisk eggs, egg yolks, 3/4 cups sugar, and orange zest in a large heatproof bowl. Bring 2 cups heavy cream, milk, cloves, star anise, cinnamon sticks, and cardamom pod to a simmer in a large saucepan over medium heat; slowly whisk into egg mixture. Steep 30 minutes. Strain. Whisk in vanilla extract and pumpkin purée. Chill 3 hours.

Stir 1 cup sugar and 1/4 cup water in a small heavy saucepan over low heat until sugar dissolves. Increase heat; boil without stirring until syrup is deep amber, brushing down sides of pan with a wet pastry brush and swirling pan occasionally, about 10 minutes. Stir in 1/3 cup heavy cream (caramel will bubble vigorously). Divide caramel among ramekins; chill until set. Divide custard among ramekins; place in a large pan. Add hot water to pan to come halfway up sides of ramekins; cover pan with foil. Bake at 350° until center is just set, 20–25 minutes. Chill until cold. Invert onto plates.

PUMPKIN BREAD
* 1 cup butter or margarine, softened
* 3 cups sugar
* 3 eggs
* 3 cups all-purpose flour
* 1 tablespoon baking powder
* 1 1/2 teaspoons baking soda
* 1 1/2 teaspoons ground cinnamon
* 1 1/2 teaspoons ground cloves
* 1 1/2 teaspoons ground nutmeg
* 1 (16 ounce) can solid pack pumpkin

In a mixing bowl, dream butter and sugar. Add eggs; mix well. Combine dry ingredients; stir into creamed mixture just until moistened. Stir in pumpkin. Pour into two greased 9-in. x 5-in. x 3-in. loaf pans. Bake at 350 degrees F for 1 hour or until bread tests done.

Wednesday, October 12, 2011

Origami Witch Pumpkin Spider Bat and Cat

Witch

Pumpkin

Spider

Bat

Cat

My Pumpkin Beverage

1/2 cup pumpkin
1 vanilla ice cream bar
1 cup milk
ice
1/4 water
2 tablespoon Splenda
cinnamon
cap of vanilla

Mix it all in blender.
Serve with top with cool whip.

This makes 1 serving 14oz.

Budin de Calabaza, my way

So, my aunt finally gave me the recipe for her budin de calabaza. I tweaked it to my taste and came out with this:

1 pumpkin can (3.5 cups of mashed pumpkin)
2 cups milk
4 eggs
2 tablespoons salt
1.5 cup Splenda
2 tablespoons butter
2 tablespoons cinnamon
1 tablespoon ginger
1 tablespoon almond
1 tablespoon vanilla
1 handful almonds
1 box raisins

Heat oven 450.
Mix it all.
Put mix on a pan (you should put some sugar in the pan and melt is before pouring the mix... I placed some more Splenda on the pan and since it did not melt well kept going and placed mix over it).
Place in oven.
450 for first 15 minutes
325 for 45 minutes

Check if it is thick. Use wood stick, if nothing sticks to it then it's done.
Take out. Let it get cold.
Cover & place in the fridge.
Serve chilled with Cool Whip.
Yum!

Saturday, September 17, 2011

DO IT ANYWAY

“People are often unreasonable and self-centered. Forgive them anyway.
If you are kind, people may accuse you of ulterior motives. Be kind anyway.
If you are honest, people may cheat you. Be honest anyway.
If you find happiness, people may be jealous. Be happy anyway.
The good you do today may be forgotten tomorrow. Do good anyway.
Give the world the best you have and it may never be enough. Give your best anyway.
For you see, in the end, it is between you and God. It was never between you and them anyway.”
― Mother Teresa

Thursday, September 15, 2011

Friday, July 15, 2011

Wednesday, April 20, 2011

STUFF TO DO WITH GRANDS MUFFINS

I put these here so I can find them later. Really bad memory and too much papers in my desk problems. :P And who knows, maybe you all can take advantage and try these which are idiot proof and fast solutions when you have an oven... I cook everything in microwave, this week only for the sake of trying to do some fishy cooking I will use the big tin monster... Yup, the STOVE! Tadaaaaa! Anyway, I came across these and before I loose them I put them here. I'm a sucker for food in the shape of all-in-one-pockets.

PIZZA CUPS:
Roll the biscuits out so they fit better in the pan, bake them for a few minutes, take them out of the oven, fill them with pizza ingredients and bake some more.

BACON, EGG & CHEESE CUPS:
Get GRANDS biscuits, and put them in a greased muffin pan, form a cup in the middle and put the egg in the center and bake 15-20 minutes. If you want, put the bacon in there as well, but it would be that hard to cook it and then add it later. Sprinkle cheese on top of the egg when it comes out of the oven.

Cooking good? PAELLA VALENCIANA

I have eaten plenty of paella before at my aunt's house, but I have NEVER actually done it. So, I placed the paella in the shopping list for Holy Week, and hubby got it. This is my next culinary experiment.

PAELLA:
Get items out of the box. Follow the 3 easy-step instructions. Hope for the best!

So far so good, at least the apartment smells like paella! LOL I also put some fish sticks in the oven, and some broccoli and corn cobs in the microwave. I just have to finish the mayoketchup, and serve. Wow, this is not a boring menu! How come I didn't think of this while pregnant? (Yup, with Kali it was tilapia with broccoli 7 times a week... no wonder right now I hate tilapia!).

Tuesday, April 19, 2011

Cooking good? PAN DE AGUA

And today I made my first attenpt in my life to make... tadadaaaaaaaa! Pan de agua boricua.

9:40PM I just put it in the oven... let's see what happens.

Off the bat, maybe once a month, but it is just too much work for a piece of bread... Wow, puts in perspective all the work that bakers do. Kudos to those diligent people that everyday wake up at 3:00am just to make bread... Without them, coffee would be so incomplete!

This was the recipe:

PAN DE AGUA

Time: 3 hrs. Serves: 4

Ingredients:

3 cups of all-purpose flour
2 1/2 (.25 ounce) packages active dry yeast
1 teaspoon of salt
1 cup of warm water
Preparation:

Dissolve the yeast in the warm water. Mix in flour, salt. Add the yeast and mix in with a spatula until it is well blended. Flour a clean surface and knead the dough until it is smooth and elastic (same texture as children modeling clay).

Wrap in a plastic film and let rise in a warm place until it doubles.
Put the dough on a floured surface and punch down to get rid of the excess bubbles. Divide the dough in 8 portions.
Work them into rolls, then slash them lengthwise with a knife.
Allow to double again before baking.
Pre-heat the oven to 218 °C (425 °F).
Oil a baking sheet.
Bake bread for 15 to 20 minutes, or until golden brown.


MY EXPERIENCE
This seemed simple and somehow became tricky... I don't cook, I just do cakes, so bear with me. Mixing the dough gave me trouble as I was not certain if I had to use all 3 packets of .25oz each or if it had to be just .25oz overall. Bad start... Mixed all and saw no difference when I left the mass alone... Separated the pieces and still saw no difference in growth... Maybe it's me or I am definitively doing something really wrong. Placed the dough in the oven, forgot oiling the baking sheet... We'll see what happens. I'm tempted to throw some pieces of butter over it... LOL

10:15PM:


Not bad for a first time. :)